Talking about my joint pain and the possibility of starting off methotrexate for pain administration.
My Lupus Story
Pt 1 – https://www.youtube.com/look at?v=1V7CVDDtOcY&record=PLHcjpW1TJqHxFbUjwPZDdza9tBSZaPCwE&index=1
Pt two – https://www.youtube.com/look at?v=Px_pmBrYQ3Q&record=PLHcjpW1TJqHxFbUjwPZDdza9tBSZaPCwE&index=two
Pt 3 – https://www.youtube.com/look at?v=n-eLk3ZN40g&record=PLHcjpW1TJqHxFbUjwPZDdza9tBSZaPCwE&index=3
Summary – https://www.youtube.com/look at?v=nfEhEwgMd9Q&record=PLHcjpW1TJqHxFbUjwPZDdza9tBSZaPCwE&index=four
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I take the shots it doesn't seem to work for my lupus it has caused blisters in the back of my throat on top of hair lost and feeling sick I can't eat anything anymore
I take the shots it doesn't seem to work for my lupus it has caused blisters in the back of my throat on top of hair lost and feeling sick I can't eat anything anymore
How about going back on Myfortic? Did you have any side effects from it? Would your Rheumatologist consider Rituximab? At least Rituximab leaves your T-cells & NKC (natural killer cells) intact to give you some immune system protection. Take care Krystle, so sorry to hear you are having so much pain. Yoga helped my pain more than any meds, so I have been very lucky. HUGS & spoons, dear!
I didn't know u had lupus. I hope u are feeling any kind of better. Though I don't have lupus I understand somewhat what ur going through. Hard when being in pain all time and not having right combination of medicine. I really don't like the idea of that medicine u were saying side effects on. If u feel there is a chance it may help takin it, try take see if helps. If u don't feel it will help I say absolutely don't take. Those side effects scared me. Please take care best way u can.
Krystle, I am sorry you are having pain. I took methotrexate when I was first diagnosed with Lupus and the other list of auto immune problems. It nearly killed me. I got so weak I could barely get to the ladies room. Hair fell out. It was terrible. I ended up in hospital for 24 days with pneumonia as it killed my immune system. I know people that have had good luck with it also, but I was not one of them. I am having PT at home now as I fell and hurt three of my limbs. I am still on oxygen from the hospital stay and pneumonia in January. Now they say I have a lung disease caused by auto immune disease. I am just plugging along and trying to stay positive, but it is hard with these sore limbs..I wish the best for you and if you need to talk I am here. XOOOX
Hi Krystle. I love your videos. I'm sorry you are suffering. I have MS so I understand the pain and fatigue. And the pills! I have a pain management doctor, too. I'm glad you can still work and fly on a plane. I wish you the very best! 🙂 Have you talked to your doctor about in home PT? My neurologist prescribed it and visiting nurses came to my home. It was covered by my insurance. Sounds like you had a deep muscle massage. Not good! Tell them you don't want a hard touch. Ask your dr if you can take hydrcodone. I take that for pain. That's quit a list of side effects. I experience flu like pain with MS. I wouldn't take a pill that's going to magnify that. I totally understand you not wanting to take that. Sounds awful! :)