(http://www.diopsys.com/) VEP for Youngsters to See (http://www.facebook.com/vepforkids) is focused to sharing Nora’s tale to assist carry awareness to the function of early detection and intervention to help you save children’s vision, and, in some circumstances like Nora’s, to help you save children’s lives. Is your pediatrician using this one of a kind examination? Likely not, and that is why this tale is so critical….
You can assist carry awareness by sharing Nora’s tale (http://youtu.be/Rx-n2CkGo1g), liking our Fb web site (http://www.facebook.com/VEPforkids) and signing the petition to aid much more accessibility to VEP vision screening for youngsters (http://www.thepetitionsite.com/takeaction/607/644/356/).
Eight-thirty day period old Nora Turner had her vision, eyes …and finally her daily life…saved by this easy, but one of a kind vision examination presented by her pediatrician for the duration of her 6-thirty day period standard perfectly check out. If Nora’s spouse and children had not moved to Connecticut in the past calendar year for her father’s new task, she wouldn’t have had this vision examination. Her prior hometown pediatric practice did not use VEP vision screening. This new vision examination finally guide to the early detection of her most cancers, named Retinoblastoma (RB), a exceptional type of eye most cancers that seems in little ones beneath the age of 5. With out the early detection afforded from taking the VEP vision examination as early as 6 months old, the result may perhaps have been extremely unique for Nora and the Turner spouse and children.
The examination, identified as the Enfant® Pediatric VEP Eyesight Check, is at the moment available in just 500 pediatric offices nationwide (there are 27,000+ pediatricians in the U.S.), so there is operate to be finished. Nora’s mom, Sarah, is operating to carry awareness to her daughter’s tale in the hope that it may perhaps assist make this examination much more readily available for other little ones nationwide…to help you save their sight…and perhaps their lives.
Study about the vision examination here: http://www.diopsys.com/people-households/pediatric-screening/about-the-enfant-vision-examination
So sad
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my 17 week old daughter has RB in her right eye and is having chemo atm her daddy had it when he was a baby/ her tumor is shriking and she has 3 more lots of chemo left
Glad it's working out for Nora. I would love to help those who do not have the same chance as her. Check out my 'saving sight' video on my channel. :)
They did similar tests on me when I was three months. That's how they found my congenital blindness. Not blastoma, but a different thing. Back then, I had to go to specialistis to get some of this done. I'm thannkful to be blind with nothing else wrong. What a hard thing for a mother to have to put her child through chimo and stuff.
Check out the story News 12 aired on Nora! Go to news12.com and search for "New Haven doctors work to save infant with rare eye cancer"
Nora has completed her chemo and her prognosis remains excellent.
Recent update from Sarah: Nora's doing great and her tumors are really shrinking.
We do, too!
We are so happy your son is doing well now. We are glad you were proactive and we hope that this message reaches more people to make everyone aware.
I am very happy to hear that your baby girl is doing great. My sister sent me this video. It really touched home for me. My son had RB in his right eye (at 2 1/2) and his ped did not found it early enough and he lost his eye and months of chemo. We asked several times about a "lazy eye" and she said it nothing, well after a month or so we had taken him to Kellog Eye Clinic at the U of M Ann Arbor and that was when we got the same news. I was heart broken. He is now 7 and doing great. Chris 🙂
Great !!